Thursday, May 5, 2011
May is Barth Syndrome Awareness Month!
Have you ever heard of Barth Syndrome? I never had, until I met Kristi Pena. Kristi a beautiful person who is mother to Christopher (you can read more about this family on the CHH blog). Christopher has Barth Syndrome, and by medical standards, should not be alive and well today. Please check out the Cross Healed Hearts blog posts or visit www.barthsyndrome.org for more information today. Knowledge saves lives! Be aware of this little known syndrome!
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CHD
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