How is she NINE years old? It's truly hard to believe. Over 9 years since my doctors didn't think she'd live, since she had two heart surgeries and nearly died multiple times. I cry sometimes just thinking about how far she's come and how great she is doing. We go to ur cardiology appointment in July, so we will once again make sure her heart is handling the pulmonary valve issues, but everything seems to be doing fine. Aside from pesky ear issues where they drain and she struggles hearing lots of days, Avery really isn't dealing with much physically at the moment. She continues her growth hormone injections daily, and she's finally creeping steadily up on the TS growth chart thanks to her GF diet. She hasn't been sick a ton despite her IGA deficiency, and we've adjusted her thyroid meds some here and there, but they seem to be doing the trick. We've definitely been blessed!
We didn't do a big party this year, but we are redoing her room with paint colors she chose (dark pink a teal with gold heart accent wall). She got clothes, some sandals, a necklace with her name on it, some sunglasses and a case, some bracelets and hair ties, a rainbow bath bomb, a bathing suit and a cool pink chandelier lamp for her new room. We had a girls day and got pedicures, ate lunch at Five Guys, and went to spend some money at Five Below (which is quickly becoming our favorite store). Later, we celebrated at home with cake and ice cream. We had her choice of nachos for dinner and made bracelets from the cool new set the Verrets gave her for her birthday, put makeup on, and played freeze tag outside before calling it a night. She said (once again) that it was the "best day ever"! She also giggled and got excited reading the approximately 200 birthday posts she received on Facebook. Avery really is a unique and special girl. I honestly don't know anyone who doesn't smile when they come in contact with her. Her joy continues to be contagious. I wonder all the time what plans God has in store for her, and I'm so very thankful I get to be her mom.
Happy Birthday to my first born!
Morning Surprise! 9 (and 1 to grow on balloons), gifts, a birthday crown and chair and a Happy Birthday banner were waiting on the birthday girl.
She had GF cinnamon and sugar waffles with chocolate sauce and a whipped cream #9...oh, and bacon!
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